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We need to be careful that our "fix" does not create more barriers to treatment

7/16/2013

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http://www.rwjf.org/en/about-rwjf/newsroom/newsroom-content/2013/07/low-income-patients-say-er-is-better-than-primary-care.html

Low-Income Patients Say ER is Better Than Primary Care

New RWJF Clinical Scholar research helps debunk commonly-held myths about frequent emergency room use.

·        Published: 7/9/2013

One of the drivers of high health care costs in the United States is the use of emergency rooms (ER) for preventable conditions by patients who generally come from the most vulnerable populations. Estimated to cost as much as $30.8 billion a year in a recent Health Affairs study, avoidable ER use is a primary target for experts seeking to reduce health care costs.

To achieve this goal and “generate system-wide savings, experts need to listen to patients and address their concerns about the cost, quality and accessibility of outpatient care,” said Shreya Kangovi, MD, a Robert Wood Johnson (RWJF) Clinical Scholar (2010-2012) supported in part by the U.S. Department of Veterans Affairs.

Kangovi’s new study reports that current approaches to getting patients from low-socioeconomic groups to seek preventive and primary care in physicians’ offices or accountable care organizations instead of hospitals are often ineffective.

“Our findings suggest that these efforts could backfire by making hospitals even more attractive to these patients. We also debunk the notion that people from these groups abuse the emergency room for no reason and need to be taught how to use it properly.”

Insurance Status is Not the Key

Working from literature that shows ER usage patterns are not necessarily linked solely to insurancestatus, Kangovi explained that she “wanted to find a way to address the ongoing disparities” she saw in her patient population. “To do so, I designed the study so that we could talk with patients whose voices are seldom heard in policy discussions.”

Kangovi and her team conducted one-on-one interviews with 64 patients, ages 18-to-64, from two urban Pennsylvania hospitals. Forty of them met the criteria to be included in the study. They were uninsured or insured by Medicaid. The respondents, who were 90 percent African American, also lived in one of five Philadelphia zip codes where more than 30 percent of the residents had incomes below the poverty level.

The results were published in the July Health Affairs cover story “Understanding Why Patients of Low Socioeconomic Status Prefer Hospitals Over Ambulatory Care.”

“We asked them: ‘What are some of the reasons you might prefer to come to the emergency room rather than your primary care doctor’s office or clinic?’” Kangovi said. “The interviews were conducted by a community health worker who was a member of their community, so there was more of a trusting relationship.”

Study respondents (both the insured and uninsured) explained that they consciously chose the ER because the care was cheaper, the quality of care was seemingly better, transportation options were more readily accessible, and, in some cases, the hospital offered more respite than a physician’s office.

Excessive Barriers to Primary Care

“As a physician, I found the results very disturbing. We discovered that our system is just riddled with barriers to primary care,” Kangovi said. Patient voices taken from study interviews tell the story best:

·        Convenience. “You must call on the same day to set up a [primary] care appointment … whenever they can fit you in.” This open-access scheduling resulted in people taking days off from work and still being unable to see a doctor. It also made it impossible for many to access transportation covered by Medicaid because the transport arrangements had to made 72 hours in advance. Late hospital hours also made care more available.  

·        Cost. “I don’t have a co-pay in the ER, but my primary [physician] may send me to two or three specialists and sometimes there is a co-pay for them. Plus there’s time off from work to go to several appointments.”

·        Quality. “The [primary care doctor] never treated me or my husband aggressively to get blood pressure under control. I went to the hospital and they had it under control in four days. The [physician] had three years.” This patient was one of many who expressed far more trust in the quality of hospital care.

Shelter from the Storm

In order to better understand study participants’ needs, Kangovi sorted them into two groups—those with five or more acute care episodes a month (group A) and those with less than five acute episodes a month (group B).

“The patients in group A had often gone through extraordinary trauma and were more likely to say that a traumatic event set off a cycle of social dysfunction, mental illness, and disability that drove their repeated hospital visits,” Kangovi explained.

“The group B patients were most often highly functional caregivers for social networks strained by poverty and illness. These people often put off caring for themselves. Both groups had extremely eloquent and valid reasons for avoiding preventive care, waiting to get sick and choosing emergency care,” she added.

Creating a National Model for Change

Acknowledging that this research has some limitations, such as the small size of the study sample, Kangovi intends to encourage other researchers to focus on vulnerable patients.

“I used the health services research training I gained as a Clinical Scholar, as well as the incredible support I received from my Clinical Scholar program mentors including my co-authors David Grande, MD, MPA, and Judith Long, MD, to address problems I saw from a public health and eventual policy perspective,” Kangovi said. “We plan to disseminate the study strategy.”

“We learned that the patients are the experts in the flaws in our health care system and the people we need to listen to,” Kangovi advised. “You hear the term ‘patient-centered care,’ well you have to talk to patients to create that care. Right now, they are telling us that we are creating a maze of hoops and hurdles that are driving them out of primary care and into the hospital.”

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Decision Making: Don’t Judge the Quality of the Decision Solely on the Outcome

7/4/2013

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My goal for this blog is not so much to describe decision making models or processes, because there is much about those available with a simple browser search.  My goal is to simply call attention to a common mistake that people often make when decisions don’t turn out the way you would have liked. That mistake is judging one’s self to be unable to make good decisions.

There is not one of us whose decisions always turn out as expected or hoped!  There are so many factors that come into play that are unforeseen that it is bound to happen.  You make what you think is a “no-brainer” and the next thing you know, everything is falling apart!  It happens. We don’t want to get so focused on that undesirable outcome that we get distracted from the subsequent decisions that then are to be made.  We need to remember that we are making decisions all the time and all we can do is take our current realities, weigh our options and make a choice that has the potential to benefit us (see blog on Self-Esteem, June 3, 2012).

Sure, let’s learn some of the models and determine when it might be best to make a quick decision, to gather more information, to get group input, or to make a collaborative group decision; but regardless of the outcome – stay diligent and involved or the outcomes will only be less desirable and you may become even more discouraged.

I know it likely sounds rather silly of me to downplay “outcome” when so much of what we do is judged on outcome.  I am not saying outcome is unimportant, but it is not ALL important.  None of us can tell the future, control all the factors, or can research a thing so
thoroughly to come up with a perfect decision; so let’s give up that fantasy right now!  Even when we make a good decision, the outcome may turn out bad.  How can that be, you ask?  Let me give you an example.

Several years ago, I was in the market for a car and wanted one that would be equipped to tow a boat. I did my research and the Chevy Caprice was the winner (many of you will remember these as police cruisers and taxi cabs!).  It was not a sexy car.  Edmund’s described it as “competent”.  Edmund’s liked the V8 engine and that is what I chose.  That engine would get up and go – when it was running, that is.  My mom and dad both owned earlier versions of this vehicle and had very few problems.  My uncle, who owned a Goodyear store and was a master mechanic, recommended the vehicle.  My dad still feels bad about his endorsing this car.  I chose the tan color vs. maroon –
otherwise, the same car.  It had problem after problem.  It was in the shop over and over again.  The decision making process was good and the decision was good.  The outcome was less than desirable and was beyond anyone’s ability to foresee.  My parent’s still have
one of those same Caprices, by the way, and it still runs and tows the boat!

Don’t judge the quality of your decision solely on the outcome!  Take the outcome into consideration, learn about decision making and make the best ones you can make.  You will benefit from that diligence, but when things don’t turn out like you expected just regroup and make another decision!
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